Alexa, who likes to go by the name Princess Lexy, is 14 years young with bright pink hair that matches her outgoing personality. She colored her hair pink so that when it began to fall out because of chemotherapy, it would “fall out pretty.” She is incredibly creative, funny and has the biggest smile – and she has been battling a brain tumor for the past 13 years.
As an infant, Alexa was growing and developing at a normal pace, however, her mother, Monica, noticed at 14 months she stopped trying to walk and began to drag her left leg. When Alexa also began clutching her left hand tightly to her chest, Monica rushed her to the doctors. The doctors conducted an MRI and found a brain tumor, the size of a small apple. The tumor had grown so large it was pushing her brain to the right of her skull causing partial paralysis on her left side. The doctors rushed Alexa into emergency surgery.
“She has been through more in her 13 years than one can even imagine,” Monica said.
Brain Tumor Named “Goomer”
Princess Lexy endured many painful procedures including 11 brain surgeries. One surgery left her completely blind. Recently, five top neurosurgeons in the country have all concluded that Alexa’s tumor is inoperable. This means there will be no more surgeries since it’s become too dangerous to operate. Radiation is no longer an option either, as it can cause secondary cancers in patients with neurofibromatosis.
“As our baby girl fights, always praying and believing that the next MRI will give us good news and always being let down repeatedly, as every treatment fails, our hope dwindles a little more,” Monica said. “The light gets a little dimmer and my soul heavier.”
But Princess Lexy refuses to let her brain tumor win. She has nicknamed it “Goomer” and she constantly says, “I will KICK CANCER’S BOOTY!! Hii-Yaaa!” followed by kicking her foot high like a ninja.
New Journey: Experimental Treatment
Princess Lexy now faces an experimental treatment known as Intra-Arterial Chemotherapy. She will be hospitalized multiple days a month. The treatment has shown success for both adults and children, but substantial challenges still lie ahead.
Through all of this, Princess Lexy’s incredible smile is a bright spot in her family’s life.
“She is strong and never gives up even through the pain. She is our lovely warrior princess,” Monica said.
We were so happy to see Princess Lexy wearing her very own veterinarian Starlight Brave Gown as she underwent treatment last month to kick cancer’s “booty.”
“Thank you again from the bottom of my heart, our hospital gowns are so, so ugly!” Monica said.
Brain Tumor Awareness Month 2017
All of us at Starlight are sending Princess Lexy a big hug. Her bravery and constant optimism are awe-inspiring! May is Brain Tumor Awareness Month and brain tumors are the 2nd leading cause of cancer-related deaths among children and teens. Awareness will accelerate the search for a cure!
Please share Princess Lexy’s story using the hashtag #gograyinmay, and donate a Starlight Brave Gown for just $25 to other heroic kids like Princess Lexy.Donate Now